Finally feeling a little better, throat still looks disgusting not sure what it is and it’s almost time for my methotrexate injection again on Tuesday.
My week just keeps getting better :( now I think I’ve got strep throat or tonsillitis, got sore throat, and weird spots on the back of my throat…….great, just what I need. I hope everyone else is having a pain free day!
These diseases not only attacks our bodies but steals our joy, our happiness, and puts us in a dark places and leaves us there and we don’t know how to get out. We then wonder if it’s worth fighting for, we ask ourselves what do we do for society, for our family? How can we contribute when we’re in the bed and can barely take care of ourselves? We ask ourselves what do we give to the relationship to our spouse, our children and our friends? It’s not a nice place to be and I hope each of us can rise up and stand up to this monster called lupus, Fibro, etc….. we can’t let it win, we are stronger than that, we CAN do this….. TOGETHER.
This photo speaks for itself….
Walk for Lupus Now - Team JustHope
Atlanta, GA - Over 7000 people and $405,000 raised so far!!!!
When will it end? I am tired of missing out on life because of this disease (lupus)!
fibromyalgiaproblems:
Strength isn’t being tough, or resilient, or even brave. To be strong is to be able to hold fast to what you believe in and who you are, or who you want to be. Strength is standing up for and staying with what you know is worth fighting for, no matter what anyone else will say or do.
Sorry I’ve not been around lately, I’m coming out of a month long flare. My liver enzymes went up from the methotrexate so had to stop that for 3 weeks, and started back on a reduced dose. Let’s just say my body didn’t like it one little bit. I was having daily migraines, nausea and severe reflux due to inflammation in my stomach and esophagus. Terrible taste in my mouth all the time and nothing tasted right. It wasn’t a come and go feeling it was 24/7, it was miserable, it took me a couple of weeks to figure it all out but when I did doctor put me on Topamax and ended up increasing the dose and increased my omeprazole dose twice. I can finally see an improvement as of yesterday :) but have some increased joint pain which I will probably have until I get back up to my regular dose of methotrexate. I had actually thought about not taking it anymore, thinking it wasn’t working well at supressing my immune system, guess it was working better than I thought. I am still struggling with depression or feeling down, I am hoping the summer months and time with my daughter will help that. Anyway, thanks for listening! I hope everyone isndoing well and pain free!
Why won’t this damn nausea go away??? I’ve had it for over a week! Enough already! ARGG!
I have not been in a good place emotionally or physically in a while. I’ve been having a pity party lately and was thinking today what my life was like before I was sick. What did I do when I was home before I was sick. I do remember the days of working a full-time job, taking the kids to practice, doctors / dentist appts, grocery shopping, cleaning house,laundry, I did it all! Now, I miss family functions and feel like life is passing me by. Everyone is out living their lives and I’m sitting here sick, watching and waiting, waiting for something…..anything……to make me feel better.
(Source: one-direction-to-your-heart, via itsthelittlebeautifulthings)
itwaslupus:
No matter how hard we try or how well we treat our bodies, all of us will go through periods of time where getting up is simply not an option. And I’m sure everyone has their own methods of staying occupied when this happens, and the internet is a great tool for that…and we’re all familiar with…
Ackk….. Nausea ALL day….wth is wrong with me? :(